Yeah, that’s not gonna work

After agonizing over the oxygen situation, Mikki and I decided that there’s no practical way to take Luke off the oxygen while having it readily available for him during an apnea episode. So he’ll stay on it until he stops having apnea episodes or a specialist who knows him well recommends weaning.

That being said, Luke has had several crying fits in the past few days, but seems to have learned to collect himself before they progress to apnea episodes. Good for our little guy!

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One thought on “Yeah, that’s not gonna work

  1. That makes sense. It’s hard to know what to do when docs tell you different things or tell you things that just aren’t practical! But sounds like a step in the right direction. :)

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