Luke and Mary have come a long way since our last update.
Luke now eats three meals a day by mouth, and only takes formula though his tube once a day. His balance has improved tremendously, and he is happy as can be. He loves Bear in the Big Blue House so much that the mere mention causes laughter through his entire body.
Mary loves Dora. She made up a Dora song, and I catch her singing “we did it” to no end when she thinks nobody is looking. I’m really going to enjoy seeing her grow up. Her silliness is contagious.
After Mary’s bath tonight, she led me into Luke’s room, pointed, and said, “guitar”, indicating that she would like me to play. I picked up my guitar and began to sing my rockabilly medley of “Ladybug Picnic” from Sesame Street and the A-B-C song.
Mary interrupted me and pointed to the mandolin in the closet, again repeating “guitar”. I gave her the mandolin and she walked into the den and began to strum and sing the ABCs.
Three times in the last week, we’ve walked in to Luke’s room in the morning, and he’s sitting up in his crib.
Another milestone this week is downright miraculous. Tuesday night, Luke and I were on a blanket in my parents’ backyard. I had just finished a plate of pot roast, and set it aside. Luke spied the plate and spied something he wanted. Instead of fussing and whining for it, he took matters into his own hands. Here is a video recreation:
I love being the daddy of a daddy’s girl.
The other night, as I worked on paperwork at the kitchen table, Mikki carried Mary in and said, “Daddy, will you dance with me?” Having watched the movie “Courageous” a couple weeks ago, I vowed never to turn down a dance with my daughter.
Mikki played “Marry Me” by Train on the iPad, and I stood Mary on my feet to start dancing. IT didn’t work too well as I was barefoot which gave a less than sturdy platform on which for her to stand. I got down on my knees and put my hands around Mary’s waist and back, and she leaned her head in my chest, actually swaying back and forth with the music as if she’d slow-danced a hundred times before.
It was a beautiful moment and I look forward to many more in this life.
I promised more videos. I hope these will suffice.
Ok. I know it’s been a while since we’ve posted any pictures or video. This weekend I’ll post two videos of Luke that will make you smile. He’s progressing very well.
A couple of weeks ago, the fam traveled to Houston for two funerals. During our trip, we accepted an invitation to eat lunch with cousins. In case you haven’t noticed, Luke’s been off his oxygen since New Years Eve. Our doc suggested it, and we gradually convinced ourselves to give it a shot. Since removing his nasal cannula, Luke has blossomed. He’s moving better, sitting unassisted for long periods of time, has more energy, is more cheerful (if that’s even possible), and seems to have realized that he’s not tied down or hindered by a tether. He acts as if he’s just one of the gang.
God be praised!
I just know I’m going to butcher their names.
Kooper, Taylor, Luke, Karson